Quality Of Life And Coping In Parents Raising Children With Duchenne Muscular Dystrophy (DMD) In Nepal

Authors

  • M Rana Tribhuvan University Teaching Hospital (TUTH), Institute of Medicine (IOM), Kathmandu, Nepal
  • R Prajapati Autism Care Nepal
  • J Chaudhari Rhythm Neuropschiatry Hospital, Nepal
  • B Gautam TPO-Nepal
  • B Gurung Mental Hospital, National Academy of Medical Sciences, Kathmandu, Nepal

DOI:

https://doi.org/10.3126/jpan.v9i2.36282

Keywords:

Coping Strategies, Duchenne Muscular Dystrophy, Quality of Life

Abstract

Introduction: Quality of Life (QoL) and Coping are important components of mental health, especially important to parents raising children with Duchenne Muscular Dystrophy (DMD). Children with DMD face difficulties due to their disability and create special challenges for parents.

Material And Method: The study aimed to assess QoL, demographic variables and coping strategies of parents raising children with DMD in Nepal. A descriptive cross-sectional design was adopted to collect data from 32 parents (mothers = 15, 47%; fathers =17, 53%) through purposive sampling. Socio-demographic pro-forma, World Health Organization's Quality of Life Questionnaire-BREF (WHOQOL-BREF) and Brief COPE Inventory were assessed.

Results: The results revealed parents scores were below cutoff <60, indicating probable poor quality of life. QOL was moderately positively correlated with coping strategies and highly positively correlated with emotion-focused coping. There were significant differences in psychological health of parents in reference to their occupation, and in reference to their hospital born children. Parents in government job had better psychological health and parents into private business significantly used emotion-focused coping. Mutual caregivers had significantly better psychological health. Parents without health related problems significantly adopted problem focused coping and emotion focused coping.

Conclusion: These findings will help stakeholders to understand DMD children and their impact on QOL and coping of parents and will facilitate to develop appropriate psychosocial intervention programs for the parents for the effective management of their children and their psycho-social wellbeing.

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Author Biographies

M Rana, Tribhuvan University Teaching Hospital (TUTH), Institute of Medicine (IOM), Kathmandu, Nepal

Associate Professor, Department of Psychiatry and Mental Health

R Prajapati, Autism Care Nepal

Clinical Psychologist

J Chaudhari, Rhythm Neuropschiatry Hospital, Nepal

Clinical Psychologist

B Gautam, TPO-Nepal

Counselling Psychologist

B Gurung, Mental Hospital, National Academy of Medical Sciences, Kathmandu, Nepal

Clinical Psychologist

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Published

2020-12-31

How to Cite

Rana, M., Prajapati, R., Chaudhari, J., Gautam, B., & Gurung, B. (2020). Quality Of Life And Coping In Parents Raising Children With Duchenne Muscular Dystrophy (DMD) In Nepal. Journal of Psychiatrists’ Association of Nepal, 9(2), 30–41. https://doi.org/10.3126/jpan.v9i2.36282

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Original Articles